Spinal Muscular Atrophy Awareness
***For more information or if you would like to donate to this cause you can do so at curesma.org.*** Our Xamara was diagnosed with SMA II late Aug. 2010 when she was 11 months old. We noticed the weakness since she was 4 months old, so at first the doctors said she was SMA type I, but because she is slowly getting stronger and has no problem breathing and swallowing on her own they changed her to SMA type II. She also has this little tremor on her hands which I read in an SMA website is a key characteristic to a child with SMA II. At this time she still has a hard time holding her head up and can't sit unassisted. Xamara is a normal little girl who loves to swim, adores Elmo and Abby, and enjoys playing with her big sister. She is such a sweetheart and is very good with her manners. We pray for all the little SMA warriors and pray the cure is discovered soon.